Cerebral Palsy

My Dis@bled called Cerebral Palsy (CP)

Intellectual level among people with CP varies from genius to mentally challenged. CP is not a progressive disorder meaning it does not worsen, but the symptoms can worsen over time doe to “wear and tear”. Medical intervention is limited as the causes are known.

The causes could be:

                                      Infections

                                      Oxygen Shortage and Asphyxia

                                      Multiple Pregnancies

                                      Other

Spastic CP is the most, causes the muscles to be tense, rigid and movements are slow and difficult. Other involuntary movements are unsteady gait, problems with balance.

Treatment

Different treatments can help a person function and live more effectively. The earlier treatment begins the better the children overcome developmental disabilities or learns new ways to do tasks.

Treatments may include one or more following:

              Physio therapy

              Occupational therapy

              Speech therapy

              Medication to alleviate pain or relax muscle spasms

              Surgery

              Orthopaedic devices

              Hyerbaric oxygen

              Botox to relax contracting muscles

Use of terms when referring to people with CP

People would rather be referred to as disabled to define restriction of the ability used to perform a normal activity.

The term “spastic” describes the spastic CP. The word “spaz” has since been used to insult disabled people, is extremely offensive. In addition, it is used to insult “able body” people.

Misconception about been born with or became CP as small children. That they are less intelligent than other people. Those with CP were stigmatized and shunned. CP is defined as damage to parts of the brain that control movement, CP does not define mental ability. In 1950s thanks to public education that has changed some what.

It is common for individuals with CP to lead normal lives. The ability to live independently also varies depending on severity of the disability. The condition does not limit people with CP to have children and parent successfully.

My Soup Diet

My Soup Diet

Ingredients:

1 Can of tomatoe and onion mix

1 Bunch of celery

750g carrots

Other vegetables like green beans or peas

Anything but not potatoes or turnips no starches

2 Pieces of chicken or 250g of red meat

1 stock

Seasoning and love

What to do:

Cut veggies how you want and cover everything with water.

Cook until the soup is ready.

I cook in the pressure for 90 mins.

Daily:

What I do daily is eat the soup when needed.

I drink coffee in the morning. My vitamins and meds.

Drink lot water.

Drink one glass of Enegade when I need in day normally when I get home from work.

Once a month spoil myself once a month

My Diet Soup

1 stock
1 Cup of soup mix
seasoning and love

Soup Diet

My Soup Diet

1 Bunch of celery

750g carrots

Other vegetables like green beans or peas

Anything but not potatoes or turnips no starches

2 Pieces of chicken or 250g of red meat

What to do:

Cut veggies how you want and cover everything with water.

Cook until the soup is ready.

I cook in the pressure for 90 mins.

Daily:

What I do daily is eat the soup when needed.

I drink coffee in the morning. My vitamins and meds.

Drink lot water.

Drink one glass of Enegade when I need in day normally when I get home from work.

Once a month spoil myself once a month

Poem

2 June 2013

This quoted from a book I read “The Theft of the Spirit – A Journey to Spiritual Healing” by Carl A. Hammerschag,

“When I first met you I was struggling with my cerebral palsy. I needed to be “supercrip,” but my journey then was strew with fear, anger and sorrow. Over the past several years it finally dawned on me that I really could dance to my own music – that’s what led to the recovery of my spirit

In the old days, I cried for my losses in a voice that was so shaky it would never be lifted up in a church choir to sing glory to God...

I cried for loss of hands that so often I could not control. Hands that would never draw paint or create. Hands that gave me shame and that I desperately tried to conceal.

I cried for my legs that lacked grace. I walk like a goose or like falling-down drunk. I cried for ballets I would never dance and mountains I would never climb.

Because they feel my caring and I think now that God hears my labored song and welcome it.

My hands? They still can’t draw but they do create. They create loving connection when I reach to touch someone in need.

As for my legs, sure they stumble and I fall, but grace I now treasure in a different way – I’m dancing through my life aware of my excitement in the journey and the adventure in every step.

I have still not totally accepted. I still hurt and cry, but awareness of my limits doesn’t consume me anymore because I finally see that the real hurt is not what others inflict but what I do to myself. For not accepting the me that is, which is beautiful and still growing.”

As Dragon Willow I hope I get there